of the SIDS Network continue to grow!
Other ways to help can be found here.
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If you would like your organization listed here, please e-mail the information to sidsnet1-at-sids-network-dot-org.
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Pediatrics; with Vincent Iannelli, M.D.http://pediatrics.about.com
Parenting: Babies & Toddlers; with Lynn M. Johnsonhttp://babyparenting.about.com
Death and Dying;with Trudy Weathersbyhttp://dying.about.com/
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National Foundation for Abused and Neglected Children http://www.gangfreekids.org provides information on: 1. Child Abuse, 2. Shaken Baby Syndrome 3. "Tips for Kids" and "What Parents Can Do" to avoid being victims of youth gang crime and violence; and what they can do to keep gangs out of their neighborhood. (source: Marcia A. Jones, 3/20/00,nfanc@hotmail.com) |
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Twinslist.org (http://www.twinslist.org) A special FAQ has been created specifically for Loss and Bereavement Resources. |
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Empty Arms Empty Heart,http://www.childloss.com
"I send out memorial prints, and bereavement packets with mementos and information, poems, sympathy card: All that I design." With Peace, Love, And Honor, In Conner's memory: Born still 7/29/97 At 38 Weeks Kelly Berrigan |
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David Baldwin's Trauma Info Pages,http://www.trauma-pages.com![[Changed]](images/change.gif){kind=small} (6/28/99) |
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Halo Sleep Systems, Inc. -http://www.halosleep.com Dedicated to reducing the risk of SIDS through engineered and tested products. Supporting SIDS research through various programs including donating 5% of profits annually. |
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MedExplorer -http://www.medexplorer.com
- is a free health/medical search engine for Healthcare Professionals, patients and their families and General Users alike. There are no membership or registration requirements. |
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Babies On-Linehttp://www.babiesonline.com |
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 Connecting Mental Health
Resources |
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At familyhonor you will find information about parenting, families, medical, a kids page,
missing and abused children, pow/mia issues, etc. |
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ACD home page We have recently begun a web page for our organization. ACD (Alveolar Capillary Dysplasia) effects about a half a dozen children a year in the US (exactly numbers are not available). It was a tragedy when each of our families went through our loss and could find no one else. Today we have started to remedy this. The ACD Association is dedicated to providing information and support to families and to communicate with the medical community in their ongoing research. (source: Madonna Myers, founder,mmyers531@aol.com, 6/24/98) |
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Babies Online Search Engine athttp://www.babiesonline.com/links.htm |
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Heart-related Links |
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NEC Corporation
(Japanese only) |
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Waiting With Love |
I'd like to tell you about a new site called . It's for parents who choose to continue a pregnancy after learning their unborn baby will die before or shortly after birth and for parents who learn their newborn will die soon. The URL ishttp://www.erichad.com/wwl/
thank you!
Maribeth Doerr (source: Maribeth Doerr, 12/27/97)
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Pregnancy & Parenting Search Engine |
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Debbi Dickinson - Healing Your Griefhttp://www.debbidickinson.com |
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DES Action USA |
DES Action USA is a national, non-profit consumer organization dedicated to informing the public about DES (diethylstilbestrol) and helping DES-exposed individuals. We publish a quarterly newsletter, The DES Action Voice, and many publications on various aspects of DES exposure. We also provide a link between DES-exposed people and researchers and the medical community.
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A Quiet Place |
A commentary on Funeral Service Providers.
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I searched and found some Twins Loss Support as follows: Bereavement Support:http://www.familyvillage.wisc.edu/lib_bere.htm |
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Center for Loss in Multiple Birth, Inc (CLIMB): c/o Jean Kollantai PO Box 1064 Palmer, AK 99645 (907) 746-6123 Lost Angels, now called L.I.M.B.O. (Loss in Multiple Birth Outreach): to subscribe send a message tomajordomo@absil.com |
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Twinless Twins |
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SIDS Frequently Asked Questions list posted in misc.kids.info |
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Brandi's Room. Angels, coping and grieving info for parents and families who have lost one or more of their precious children, and related stories and links. (6/14/96) |
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Hygeia...An Online Journal for Pregnancy and Neonatal Loss. (3/3/96) |
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Abiding Hearts, Inc. (8/17/99) |
is an international support and resource center for parents continuing a pregnancy after prenatal diagnosis of a fatal or non-fatal birth defect.
I feel our group is necessary under PG loss because with prenatal diagnosis, the loss begins when the parents are told that their baby will not survive birth/will be handicapped, not at any actual physical birth/death."
Maria La Fond
Bereaved Parent
President, Abiding Hearts, found athttp://www.imt.net/~hearts
P.O. Box 904
Libby, MT 59923
PH: 406-293-4416
FAX:
E-mail:hearts@lclink.com
website coming soon: www.abidinghearts.com
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Support
Organization For Trisomy 18, 13 And Other Disorders |
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The Chromosome 18 Registry
&Research Society |
This site includes a web-based discussion group for T18. There are some trisomy 13 parents who have found a home here too.
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National Funeral Directors Association. |
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American Medical Association - provides information on the AMA, its mission and members, along with abstracts from the Journal of the American Medical Association. |
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American Academy of Pediatrics - A voice for children for more than 60 years, the AAP is an organization of 50,000 pediatricians dedicated to the health, safety and well-being of infants, children, adolescents and young adults. |
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National Health Information
Center (NHIC). |
The NHIC is a health information referral service that puts health professionals and consumers who have health questions in touch with those organizations that are best able to provide answers. NHIC was established in 1979 by the Office of Disease Prevention and Health Promotion (ODPHP), Office of Public Health and Science, Office of the Secretary, U.S. Department of Health and Human Services.
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Infanlos Family Pageshttp://www.chesapeake.net/~amet |
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The Compassionate Friendshttp://pages.prodigy.com/CA/lycq97a/lycq97tcf.html |
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http://www.rollanet.org/~badmedic/htmls/sids.html |
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Bereaved Families of Ontariohttp://www.inforamp.net/~bfo/ |
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http://www.cmhcsys.com/guide/grief.htm |
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Subsequent Pregnancy After Losshttp://www.inforamp.net/~bfo/spals_info.html#subs |
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H.A.N.D.http://members.aol.com/handinfo1/handhome.html |
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Newsgrouphttp://web.co.nz/~katef/sspl/ |
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Parents Place (Pregnancy Loss BB)http://www.parentsplace.com:8000/dialog/get/pregloss.html |
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Hygeiahttp://www.connix.com/~hygeia/ |
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GriefNethttp://rivendell.org/index.html |
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Miscarriagehttp://www.internet-is.com/misckids/miscarriage/index.html |
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http://www.mnsinc.com/inciid/mismanl.html |
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S.A.N.D.http://hedgehog.highway1.com.au/~lawtbm/sandshome.html |
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Invincible Summer (For those who have lost only/all childhttp://www.drizzle.com/~hall/invsum |
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http://home.earthlink.net/~jimncarol/otherpla.htm |
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I.A.N.D.S.http://www.iands.org/iands |
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Pregnancy Complications Supporthttp://www.mediconsult.com/noframes/pregnancy/support/ |
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Bereavement Resourceshttp://asa.ugl.lib.umich.edu/chdocs/support/bereave.html |
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http://www.funeral.net/info/brvres.html |
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http://www.grievewell.com |
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Grief Counseling Centerhttp://www.hsc.edu/admin/counsel/coping.html |
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Children and Griefhttp://www.grannyg.bc.ca/ckidbook/grief.html |
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http://www.cmhc.com/factsfam/grief.htm |
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http://www.aacap.org/factsfam/grief.htm |
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http://www.bcm.tmc.edu/civitas/families/death_pr.html |
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UCC Death of a Child Christian training programhttp://www.apk.net/ucc/caring/child.htm |
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Webster Death/Dying Resourceshttp://www.cyberspy.com/~webster/death.html |
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Tom Golden's Crisis, Grief & Healinghttp://www.dgsys.com/~tgolden/1grief.html |
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Infertilityhttp://www.pinelandpress.com/toc.html |
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Nursing & Health Care Resources On The Net (3/15/97) |
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Medical Breakthroughs from Ivanhoe (2/23/97) |
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The NurseNetA Home Page Dedicated To Nursing Practice of all Disciplines (1/7/96) |
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Links to child safety, parenting, and missing children resources. Believing in a brighter future for all children. (1/11/96) |
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The Contact Center Network, a comprehensive Web directory of over 10,000 nonprofit resources, directories and publications, arranged by geography as well as by issue (10/4/95) |
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The National Public Telecomputing NetworkHealth and Wellness Center(9/25/95) |
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Sidran Foundation and Press Books and Resources on Trauma and Dissociation |
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Mednexus - Contains medical related resources consisting of name, addresses and phone numbers for national and local organizations willing and able to offer information, support, or referrals. |
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Sleep Medicine Home Page This home page lists resources regarding all aspects of sleep including, the physiology of sleep, clinical sleep medicine, sleep research, federal and state information, patient information, etc. |
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Emotional Support: Physical Loss, Chronic Illness, and Bereavement: A Guide to Internet Resources. Lots of discussion lists, bulletin boards, etc. dealing with grief and bereavement. |
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Psychology Self-Help Resources on the Internet |
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Pregnancy and Health Education Information |
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Edmund Hayes Home Page links to all of the Medical Professions and to other very useful and fun sites |
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The parenting resource center on the web |
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The Good Health Web is an attempt to bring together valuable information about the field of Health. |
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Bereavement Research Network (2/27/96) |
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Center for Inherited Disorders of Energy Metabolism (CIDEM). The CIDEM Laboratories are a group of inter-disciplinary, clinical diagnostic laboratories (located in Cleveland, Ohio) which focus on disorders of mitochondrial function that interfere with pyruvate metabolism, fatty acid oxidation, the Krebs cycle, and the electron transport chain. (2/27/96) |
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Fatty acid Oxidation Disorder Communications network (2/27/96) |
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Facts About Lead Poisoning |
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Growth Houseis a private meeting facility for human service organizations dealing with HIV/AIDS, death and dying issues, and bereavement. Our web site also contains pages for hospice information and AIDS/HIV information. Also, we are working on program development for Growth House and would like to add a program related to SIDS or other infant death issues. Do you know if there is a SIDS chapter in San Francisco, or if someone would like to start one? We work with several organizations that offer bereavement programs at our location and would welcome the opportunity to discuss joint efforts in San Francisco. (5/19/96) |
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Achoo - Healthcare Directory |
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On October 23, 1993 my 21 year old son, Michael, was killed in a alcohol related car crash. It was as if my world had ended. Through some valuable resources on the net, and The Compassionate Friends support group, I have been able to experience recovery from my grief....and much joy has returned to my life.Here are some things I wrote and some other Web resources that helped me. I hope they help you too! (7/5/96) |
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