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Sudden Infant Death Syndrome Network's
Electronic Newsletter

Reaching Out
Issue 200710
October 13, 2007

Sudden Infant Death Syndrome (SIDS) Network Electronic Newsletter 200710
October 13, 2007

"May The Peace Of The Season Settle Gently On Your Home"

SIDS Network Web Site Sponsorship

For the month of October 2007 the SIDS Information Web Site is sponsored by the Glerum Family in loving memory of Lauren Elizabeth Glerum.

There are some months available for sponsorship in 2008. Information about sponsorship of the web site can be found at:
http://sids-network.org/your_donation_can_help_the_sids_.htm 

Contents:

1. Facing Holidays and Special Occasions
2. National Standards Needed to Understand the Impact of SIDS (How you can help)
3. More than 190 FAQ and SIDS Research Information Articles
4. Support the SIDS Network when you purchase flowers and gift baskets

5. Parents and siblings share information and answer FAQs about SIDS
6. Holiday Donations to help the SIDS Network
7. Donate your used car, truck, boat, camper or RV to the SIDS Network

1. Facing Holidays and Special Occasions

You can read, download, and share a variety of articles related to Facing Holidays and Special Occasions. Those articles are:
- "Surviving the Holidays After SIDS" http://sids-network.org/survhol.htm
- "Facing Anniversaries, Holidays, and Special Events" http://sids-network.org/facing.htm
- "Holidays, A Difficult Challenge" http://sids-network.org/difficult.htm
- Grief Information http://sids-network.org/grief.htm
- Frequently Asked Questions - Parent to Parent, "What suggestions do you have for facing holidays and anniversaries? http://www.sids-network.org/faq/faqfacingholidays.htm 

Please feel free to share any suggestions by sending the SIDS Network an e-mail message with "Facing Holidays and Anniversaries" as the topic to:
sidsnet1-at-sids-network-dot-org 

2. National Standards Needed to Understand the Impact of SIDS (How you can help)

A number of articles hit the news the past few of days regarding the Scripps Howard News Service Investigation of SIDS deaths. The news refers to a study published in the Scripps Newspaper Group — Online, October 8, 2007, entitled, "SAVING BABIES: EXPOSING SUDDEN INFANT DEATH IN AMERICA" by Thomas Hargrove and Lee Bowman of the Scripps Howard News Service. As stated in and editorial by Dale McFeatters (Scripps Howard News Service), "In the early '90s, the "Back to Sleep" campaign was launched to persuade parents to have their newborns sleep exclusively on their backs. And the campaign appeared to have dramatic results, with authorities claiming that by 2004 SIDS deaths had fallen by more than half. But an investigation by Scripps Howard News Service reporters Thomas Hargrove and Lee Bowman casts deep doubt on the accuracy of those figures. Because of sloppy procedures, manipulation of statistics and lack of standardization, the success of public health efforts against SIDS has been substantially overstated."

Please keep the following in mind:

- Inconsistent diagnosis of infant death results in parents being left with unclear explanations for their baby's death and unwarranted feelings of guilt.

- Research efforts could be misguided by inconsistent infant death data. A similar investigation revealed that misdiagnosed infant death mislead research for a generation. You can read about that report at False Alarm: How a Syracuse Study Dominated SIDS Research And Helped Conceal Infant Homicides in the United States for a Generation.

- You can help ensure that a consistent national standard for infant death diagnosis and reporting is adopted. Please visit the Scripps Howard News Service web site at http://scrippsnews.com/sids/ and explore the information, explore the database of 20,000 records of babies who died suddenly from 2000-2004, and participate in the forums.

- Contact your Legislators and demand that the CDC's Sudden Unexpected Infant Death Investigation Protocol must be applied as a mandatory protocol and not a voluntary protocol as it is now. Read about the importance of a standardized protocol at: http://sids-network.org/experts/autopsy_protocol.htm.

- Many related articles can be read at: http://sids-network.org/experts.htm.

- Please read the article, "Mass Media's" Role in SIDS Education, at http://sids-network.org/media.htm.

We are currently gathering more information about this specific research and will keep you updated.

You can read the Scripps study here.

3. More than 190 FAQ and SIDS Research Information Articles

The SIDS Network offers over 190 articles covering Frequently Asked Questions (FAQ) and SIDS research information. These articles can be found at:
http://sids-network.org/experts.htm 

Updated research articles related to:
SIDS and serotonin-using brain cells (10/31/06)
Pacifiers and SIDS (12/10/2005)
Do Immunizations Cause SIDS? (3/30/04)
Cyst on Throat (3/30/04)

SIDS, age, and risks (5/10/03)
Is cord blood useful for SIDS research? (1/29/03)
SIDS and the serotonin transporter gene (1/29/03)
Cry Analysis And SIDS (1/24/03)
Laryngomalacia ("Floppy Voice box") is not a cause of SIDS (1/20/03)
Helicobacter Pylori, and SIDS (1/19/03)
Forest Fire Smoke and SIDS (9/25/03)
Prone position and prematurity; aspiration (10/11/03)
Is it safe to let babies sleep in swings and/or bouncy chairs? (1/27/03)
My Baby Will Not Sleep On It's Back (1/27/03)

Many of these articles come from some of the leading SIDS researchers, and include their e-mail address. Please feel free to browse the article titles or use the SIDS Network's web site search engine at:
http://sids-network.org/search.htm 

 

4. Support the SIDS Network when you purchase flowers and gift baskets

 

Your generosity has come in the form of donations, volunteering, fundraising efforts, and special event participation -- for that we can never thank you enough. When it comes time to show your gratitude to loved ones this holiday season, though, we hope you can keep the SIDS Network mind.

As part of a new fundraising initiative, when you purchase flowers and gift baskets online from our Flower Petal.com website, 12% of the proceeds are sent to the SIDS Network. In fact, you can visit http://sids-network.flowerpetal.com any time of the year to send flowers and gifts for birthdays, graduations, anniversaries and holidays -- with every purchase you make, you will be supporting our efforts. Thank you for your continued support.

5. Parents and siblings share information and answer FAQs about SIDS

The parents and siblings frequently asked questions (FAQ) about SIDS on the SIDS Information Web Site can be seen at http://sids-network.org/faqparents.htm and http://sids-network.org/sibling/sibfaq.htm. Responses can be e-mailed to us at sidsnet1-at-sids-network-dot-org. We will then post the responses to this area of the web site. The responses are opinions and no one person is right or wrong. We do not need to include an individual's name or any other identifying factors unless the author requests to be identified in some way or they want their email address attached.

6. Holiday Donation to the SIDS Network

Your donation can help the SIDS Network’s award winning Internet services ... throughout your area, across the United States, and around the world!

Each dollar counts. Any donation, no matter how small, makes a difference.

Your donation helps maintain:

SIDS Network web site http://sids-network.org
SIDS Educational Services web site http://sidssurvivalguide.org
Wintergreen Press web site http://wintergreenpress.com
SIDSNET Listerver http://sids-network.org/mlst.htm

A secure credit card donation can be made at: http://sids-network.org/paypal.htm

or Please mail your donation to:
SIDS Network
PO Box 267
Ledyard, CT 06339

Additional opportunities to help can be found at:
http://sids-network.org/your_donation_can_help_the_sids_.htm  and
http://sids-network.org/ 

7. Join the Hundreds who have already donated their used car, truck, boat, camper or RV to help the SIDS Network

The SIDS Network, Inc. has arranged with the nation's largest car donation charity (processed more than 325,000 car donations for hundreds of charities across America since 1992) to manage its vehicle donation program. You can now donate your used car, truck, boat, camper or RV and receive a tax deduction for its fair market value -- and we'll even arrange to pick it up!

You can donate your vehicle even if it is not in running condition. We will make all the arrangements to pick up your vehicle donation at no cost to you. We can arrange to pick up most vehicle donations anywhere in the continental United States and Hawaii and supply you with the necessary paperwork so you can claim your tax deductible charitable vehicle donation.

Please complete the online donation form and help the SIDS Network, Inc. today!

http://sids-network.org/donateacar/car_faq.htm 

You have just finished reading the Sudden Infant Death Syndrome (SIDS) Network Electronic Newsletter. This newsletter is available on the Web site at http://sids-network.org/newsletter/. If you come across articles or information on SIDS, please e-mail the information to sidsnet1-at-sids-network-dot-org. We send this newsletter to interested people through several e-mail mailing list sources. Because of this, you may receive more than one copy. We apologize for this inconvenience. You may remove yourself from the SIDS Network e-mail mailing list by sending an email to:
sidsnet-unsubscribe@yahoogroups.com

Help ensure that the Global Internet services
of the SIDS Network continue to grow!

Donate directly to the SIDS Network securely with a major credit card.

Other ways to help can be found here.

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